Ileana International Press Releases - EIN Presswire - Press Release Distribution Service

Published on August 22, 2025 - 18:23 GMT

Project Alive Urges FDA to Prioritize Approvals for Life-Saving Rare Disease Treatments Fof RGX-121 Gene Therapy

CRESTLINE, CA, UNITED STATES, August 22, 2025 /⁨EINPresswire.com⁩/ -- Project Alive, a leading nonprofit dedicated to advocating for children and families impacted by Hunter syndrome (MPS II), is calling on the U.S. Food and Drug Administration (FDA) to …

Distribution channels: Healthcare & Pharmaceuticals Industry ...

Published on August 6, 2025 - 17:00 GMT

Project Alive Urges FDA to Prioritize Approvals for Life-Saving Rare Disease Treatments

The organization is reaching out to the FDA for support CRESTLINE, CA, UNITED STATES, August 6, 2025 /⁨EINPresswire.com⁩/ -- Kristin McKay, President and Executive Director of Project Alive, is calling on the U.S. Food and Drug Administration (FDA) to …

Distribution channels: Healthcare & Pharmaceuticals Industry, Human Rights ...

Published on May 7, 2025 - 19:07 GMT

UCLA to Host LABEST Science Conferences on May 21-22, Featuring Key Industry Leaders

LOS ANGELES, CA, UNITED STATES, May 7, 2025 /⁨EINPresswire.com⁩/ -- The UCLA Technology Development Group (UCLA TDG) is proud to announce the upcoming LABEST Week, marking a significant milestone in the evolution of Los Angeles as a premier life science …

Distribution channels: Conferences & Trade Fairs, Education ...

Published on April 28, 2025 - 00:00 GMT

UCLA TDG LABEST Drives BioSuccess in Los Angeles

Bioscience event sparks the Los Angeles Economy LOS ANGELES, CA, UNITED STATES, April 27, 2025 /⁨EINPresswire.com⁩/ -- LABEST, a premier bioscience and MedTech event, continues to position Los Angeles as a global leader in biotech innovation and economic …

Distribution channels: Business & Economy, Conferences & Trade Fairs ...

Published on April 7, 2025 - 20:42 GMT

Hunter Syndrome Families Gather for 'Building a Future Together' Conference & 'Cure Within Reach' Gala in Chapel Hill

Determined organizations unite with a singular purpose. CHAPEL HILL, NC, UNITED STATES, April 7, 2025 /⁨EINPresswire.com⁩/ -- Families affected by MPS will come together on May 3rd, 2024, for the Building a Future Together conference, an empowering event …

Distribution channels: Conferences & Trade Fairs, Education ...

Published on March 27, 2025 - 05:08 GMT

Heritage Museum of Orange County & Kellogg Garden Products Celebrates New Exhibit at John Wayne Airport.

SANTA ANA, CA, UNITED STATES, March 26, 2025 /⁨EINPresswire.com⁩/ -- – The Heritage Museum of Orange County in conjunction with Kellogg Garden Products proudly executed a ribbon-cutting ceremony for its newest exhibit at John Wayne Airport. This …

Distribution channels: Aviation & Aerospace Industry, Culture, Society & Lifestyle ...

Published on March 20, 2025 - 00:17 GMT

Scorpius Space Launch Company’s Advanced Cryogenic Tanks successfully complete mission

The Scorpius Space Launch Company provides the propulsion system for the Landing of Intuitive Machines' Athena Lunar Lander TORRANCE, CA, CA, UNITED STATES, March 19, 2025 /⁨EINPresswire.com⁩/ -- The Scorpius Space Launch Company (SSLC) proudly …

Distribution channels: Aviation & Aerospace Industry, Military Industry ...

Published on March 12, 2025 - 18:50 GMT

Project Alive ED Recognized for Transformative Leadership in Rare Disease Advocacy During Women’s History Month

Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has.- Margaret Mead LOS ANGELES, CA, UNITED STATES, March 12, 2025 /⁨EINPresswire.com⁩/ -- – As the nation celebrates Women’s …

Distribution channels: Education, Healthcare & Pharmaceuticals Industry ...

Published on February 24, 2025 - 22:35 GMT

Project Alive Shines a Light on Rare Disease Week and Rare Disease Day to Raise Awareness for Hunter Syndrome

WASHINGTON, DC, CA, UNITED STATES, February 24, 2025 /⁨EINPresswire.com⁩/ -- – Project Alive, a leading nonprofit dedicated to advancing research and support for individuals affected by Hunter syndrome (MPS II), is joining the global community in …

Distribution channels: Healthcare & Pharmaceuticals Industry ...

Published on February 19, 2025 - 18:03 GMT

Heritage Museum of Orange County Brings Local History to John Wayne Airport

Kellogg Garden Celebrates 100 Years of Business SANTA ANA, CA, UNITED STATES, February 19, 2025 /⁨EINPresswire.com⁩/ -- The Heritage Museum of Orange County (HMOC) is thrilled to announce the opening of a new exhibit showcasing the rich history of the …

Distribution channels: Agriculture, Farming & Forestry Industry ...

Published on February 11, 2025 - 15:00 GMT

UCLA TDG Expands LABEST for a Dynamic Week of Discovery and Advancement in Bioscience and MedTech

UCLA MedTech Conference and LABEST Bioscience Unite for a Powerhouse Event in May 2025 LOS ANGELES, CA, UNITED STATES, February 11, 2025 /⁨EINPresswire.com⁩/ -- – The UCLA Technology Development Group (UCLA TDG) is taking innovation to the next level by …

Distribution channels: Education ...

Published on February 10, 2025 - 15:00 GMT

Grades of Green Welcomes New Executive Director

Meet Dr. Kelley Lê EL SEGUNDO, CA, UNITED STATES, February 10, 2025 /⁨EINPresswire.com⁩/ -- – Grades of Green, a local environmental education nonprofit with roots in the South Bay, is proud to announce Dr. Kelley Lê E.D. as the new executive director of …

Distribution channels: Education ...

Published on December 30, 2024 - 15:41 GMT

Muenzer MPS Research and Treatment Center to Host Advisory Council Meeting in Chapel Hill on January 7, 2025

Tour the new treatment center. CHAPEL HILL, NC, UNITED STATES, December 30, 2024 /⁨EINPresswire.com⁩/ -- — The Muenzer MPS Research and Treatment Center, located at the University of North Carolina, Chapel Hill, will host an Advisory Council Meeting on …

Distribution channels: Culture, Society & Lifestyle, Healthcare & Pharmaceuticals Industry ...

Published on October 24, 2024 - 13:42 GMT

Lights, Camera, Action: Get Ready for “Do Not Disturb” – A Hilarious Take on Hollywood Dreams

"Do Not Disturb" will screen at Austin International Film Festival this week. AUSTIN, TX, UNITED STATES, October 24, 2024 /⁨EINPresswire.com⁩/ -- – Prepare for a rollicking ride through Tinseltown with Do Not Disturb, a witty 12-minute short …

Distribution channels: Conferences & Trade Fairs, Culture, Society & Lifestyle ...

Published on October 15, 2024 - 19:35 GMT

Project Alive: Works with Hunter Syndrome Foundation

The Wonderfall Family Festival Will illustrate that unity. REDONDO BEACH, CA, UNITED STATES, October 15, 2024 /⁨EINPresswire.com⁩/ -- The Hunter Syndrome community is comprised of numerous local organizations that have come together to battle this rare …

Distribution channels: Culture, Society & Lifestyle, Healthcare & Pharmaceuticals Industry ...

Published on October 7, 2024 - 06:46 GMT

Shawn Cheshire Accomplishes an Astounding Feat

Blind athlete conquers the Grand Canyon FLAGSTAFF, AZ, UNITED STATES, October 6, 2024 /⁨EINPresswire.com⁩/ -- – Shawn Cheshire added another remarkable feat to her impressive list of accomplishments. Prompted by a mountaineer who stated: “Blind athletes …

Distribution channels: Culture, Society & Lifestyle, Human Rights ...

Published on September 26, 2024 - 17:22 GMT

Project Alive: The Organization Continues to Make Progress

The Wonderfall Family Festival Will Magnify That Hope. FRISCO, TX, UNITED STATES, September 26, 2024 /⁨EINPresswire.com⁩/ -- – Project Alive in conjunction with the Hunter Syndrome Foundation is excited to announce the Wonderfall Family Festival . …

Distribution channels: Culture, Society & Lifestyle, Education ...

Published on September 2, 2024 - 15:46 GMT

Amezquita Family Triumphs Over Tragedy and Finds Success in Space Industry

Great story for Hispanic History Month TORRANCE, CALIFORNIA, UNITED STATES, September 2, 2024 /⁨EINPresswire.com⁩/ -- The Amezquita Family's story is one of resilience and triumph in the face of adversity. In March 2019, the family’s life changed …

Distribution channels: Aviation & Aerospace Industry, Culture, Society & Lifestyle ...

Published on September 2, 2024 - 14:00 GMT

Project Alive: A Beacon of Hope for Hunter Syndrome

The Wonderfall Family Festival Will Magnify That Hope. FRISCO, TEXAS, UNITED STATES, September 2, 2024 /⁨EINPresswire.com⁩/ -- – Project Alive is excited to announce the Wonderfall Family Festival. This vibrant fall event set to take place on October 26, …

Distribution channels: Conferences & Trade Fairs, Education ...

Published on August 13, 2024 - 00:45 GMT

LABEST 2024 Bioscience Summit Celebrates Groundbreaking Achievements and Innovations

LOS ANGELES, CA, UNITED STATES, August 12, 2024 /⁨EINPresswire.com⁩/ -- The UCLA TDG team have now caught their collective breaths and are able to bask in the success of this event. The LABEST 2024 Bioscience Summit concluded with resounding success, …

Distribution channels: Technology ...