Hereditary Neuropathy Foundation Press Releases - EIN Presswire

Published on August 29, 2025 - 10:00 GMT

CMT Unseen: HNF Launches September Awareness Campaign to Spotlight Hidden Struggles of Charcot-Marie-Tooth Disease

CMT Unseen shines a light on invisible symptoms and unites the community to raise awareness, support research, and empower families. NEW YORK, NY, UNITED STATES, August 29, 2025 /⁨EINPresswire.com⁩/ -- September marks Charcot-Marie-Tooth (CMT) Awareness …

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Published on August 28, 2025 - 10:15 GMT

Hereditary Neuropathy Foundation & University of Missouri Present The Nerve to Cure: CMT Social + Science Day and Dinner

Uniting Research, Care, and Community for Charcot-Marie-Tooth Awareness and Progress COLUMBIA , MO, UNITED STATES, August 28, 2025 /⁨EINPresswire.com⁩/ -- The Hereditary Neuropathy Foundation (HNF), in partnership with Dr. Ryan Castoro, Dr. Kathryn Moss …

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Published on April 1, 2025 - 10:15 GMT

HNF-Funded Wearable Sensor Study to Be Presented at the 2025 AAN Annual Meeting

HNF remains dedicated to funding and supporting innovative research efforts that improve the lives of those living with CMT and other neuromuscular disorders. NEW YORK, NY, UNITED STATES, April 1, 2025 /⁨EINPresswire.com⁩/ -- The Hereditary Neuropathy …

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Published on February 27, 2025 - 11:15 GMT

Become a Certified CMT-FOM Clinical Evaluator at the HNF Clinical Trial Readiness Summit

Become one of the first Fully Certified CMT-FOM Clinical Evaluators at the upcoming HNF Clinical Trial Readiness Summit in Nashville, TN. NEW YORK, NY, UNITED STATES, February 27, 2025 /⁨EINPresswire.com⁩/ -- The Hereditary Neuropathy Foundation (HNF) is …

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Published on January 16, 2025 - 11:15 GMT

CMT Summit + Retreat 2025: Uniting Patients, Researchers, Regulators, and Industry Leaders to Accelerate CMT Research

Join patients, researchers, and industry leaders April 24-26 in Nashville to advance CMT research and empower wellness. NEW YORK, NY, UNITED STATES, January 16, 2025 /⁨EINPresswire.com⁩/ -- The Hereditary Neuropathy Foundation (HNF) is thrilled to …

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Published on October 15, 2024 - 10:15 GMT

Wearable Tech Study Delivers Strong Results for CMT Clinical Trials

Hereditary Neuropathy Foundation aims to de-risk CMT clinical trials and improve outcomes by incorporating FDA-registered wearable devices for remote monitoring NEW YORK, NY, UNITED STATES, October 15, 2024 /⁨EINPresswire.com⁩/ -- Charcot-Marie-Tooth (CMT …

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Published on October 8, 2024 - 10:03 GMT

Hereditary Neuropathy Foundation (HNF) Expands Charcot-Marie-Tooth (CMT) Biobank Inventory Now Available to Researchers

HNF expands CMT Biobank with immediate access to biospecimens to accelerate biomarker and translational research. Calling researchers, industry and patients. NEW YORK, NY, UNITED STATES, October 8, 2024 /⁨EINPresswire.com⁩/ -- The Hereditary Neuropathy …

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Published on September 19, 2024 - 10:03 GMT

HNF’s Team CMT Partners with Rock 'n' Roll Running Series to Raise Funds for Charcot-Marie-Tooth (CMT) Research

The Hereditary Neuropathy Foundation (HNF) is thrilled to announce a new partnership with the Rock 'n' Roll Running Series to raise funds for CMT Research. NEW YORK, NY, UNITED STATES, September 19, 2024 /⁨EINPresswire.com⁩/ -- The Hereditary …

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Published on September 4, 2024 - 10:05 GMT

Hereditary Neuropathy Foundation Announces CMT Awareness Month 2024: “CMT Speak Out”

Throughout September, HNF encourages the CMT community to unite and speak out through a variety of initiatives: NEW YORK, NY, UNITED STATES, September 4, 2024 /⁨EINPresswire.com⁩/ -- The Hereditary Neuropathy Foundation (HNF) is proud to announce the …

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Published on August 20, 2024 - 10:05 GMT

HNF participates in inaugural Critical Path Institute (C-Path) Global Impact Conference in Washington

Allison Moore, Founder/CEO will participate in the the session, titled “Navigating the Patient-Focused Drug Development Roadmap.” NEW YORK, NEW YORK , UNITED STATES , August 20, 2024 /⁨EINPresswire.com⁩/ -- Hereditary Neuropathy Foundation (HNF) is proud …

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Published on May 16, 2024 - 11:00 GMT

Digital Health Technologies for Charcot-Marie-Tooth (CMT) Disease

Wearable-based Remote Monitoring of Upper and Lower Limb Function in CMT Pilot Study launches at HNF's CMT Clinical Trial Readiness Summit, June 7th & 8th. NEW YORK, NY, UNITED STATES, May 16, 2024 /⁨EINPresswire.com⁩/ -- The Hereditary …

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Published on May 7, 2024 - 10:01 GMT

HNF Announces the CMT Clinical Trial Readiness Summit

A two-day summit focused on preparing for Charcot-Marie-Tooth (CMT) Disease clinical trials. NEW YORK , NEW YORK , UNITED STATES , May 7, 2024 /⁨EINPresswire.com⁩/ -- HNF is thrilled to announce its first CMT Clinical Trial Readiness Summit to be held …

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Published on January 22, 2024 - 11:15 GMT

HNF Launches Groundbreaking ‘ABCs of CMT Pain Management’ Guide

A transformative resource in addressing pain within Charcot-Marie-Tooth Disease (CMT) has arrived, propelled by the voices & experiences of the CMT community. NEW YORK, NEW YORK , UNITED STATES , January 22, 2024 /⁨EINPresswire.com⁩/ -- The Hereditary …

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Published on January 10, 2024 - 11:15 GMT

Reducing Genetic Testing Barriers for the Charcot-Marie-Tooth Community

Hereditary Neuropathy Foundation Partners with InformedDNA® on CMT Genie Project NEW YORK, NEW YORK , UNITED STATES , January 10, 2024 /⁨EINPresswire.com⁩/ -- In partnership with InformedDNA® , the Hereditary Neuropathy Foundation (HNF) has added more …

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Published on October 5, 2023 - 10:15 GMT

Charity Clay Shoot in Fort Worth - October 14, 2023

Tarrant county family is hosting an annual charity clay shoot and concert that raises money and awareness for gene therapy research for single gene defects. FORT WORTH, TEXAS , UNITED STATES , October 5, 2023 /⁨EINPresswire.com⁩/ -- For the 4th year in a …

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Published on August 31, 2023 - 10:04 GMT

HNF announces Pediatric CMT Natural History Study Enrollment Opening at Two Centers of Excellence

The observed prevalence of CMT symptom onset before age of 16 underscores urgent unmet need to treat this progressively debilitating disease upon diagnosis. NEW YORK, NY , UNITED STATES, August 31, 2023 /⁨EINPresswire.com⁩/ -- Charcot-Marie-Tooth (CMT) …

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Published on August 17, 2023 - 10:03 GMT

First Ever Biorepository for Charcot-Marie-Tooth, HNF Launches the CMT Biobank

The new CMT Biobank will collect and store patient samples, including blood, tissue, skin fibroblasts, Induced Pluripotent Stem Cells (iPSCs), and more! NEW YORK, NY, UNITED STATES, August 17, 2023 /⁨EINPresswire.com⁩/ -- Charcot-Marie-Tooth (CMT) disease …

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Published on April 14, 2023 - 09:30 GMT

Cambridge-led natural history study identifies MTRFR/C12orf65 deficiency to improve diagnosis and therapy development

This research will potentially show a method that may be quicker and better at identifying baseline disease phenotypes to support research and clinical trials. NEW YORK, NEW YORK, UNITED STATES, April 14, 2023 /⁨EINPresswire.com⁩/ -- Cambridge-led …

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Published on February 8, 2023 - 11:15 GMT

Hereditary Neuropathy Foundation Launches New Website and Webinar to Support Charcot-Marie-Tooth Disease Research

HNF's website provides CMT community, academia, and biotech industry a hub for exploring research, clinical trials, vital resources, and ways to get involved. NEW YORK , NEW YORK , UNITED STATES , February 8, 2023 /⁨EINPresswire.com⁩/ -- – Charcot- …

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Published on October 21, 2022 - 10:00 GMT

Hereditary Neuropathy Foundation Re-Launches One-of-A-Kind Patient Registry for Charcot-Marie-Tooth Disease Research

This user-friendly platform allows patients, caregivers, clinicians, and researchers the ability to manage health data to elevate CMT patient care. NEW YORK, NEW YORK, UNITED STATES, October 21, 2022 /⁨EINPresswire.com⁩/ -- - Charcot-Marie-Tooth (CMT) …

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