The Myositis Association Press Releases - EIN Presswire - Press Release Distribution Service

Published on September 21, 2026 - 14:00 GMT

The Myositis Association recognizes leaders in rare disease advocacy, science and care with Heroes in the Fight awards

Father Stuart Long, inspiration for the Mark Wahlberg film Father Stu, will be posthumously honored at MyoCon 2026 ST. LOUIS, MO, UNITED STATES, September 21, 2026 /⁨EINPresswire.com⁩/ -- The Myositis Association (TMA) is proud to honor inspiring leaders …

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Published on September 21, 2026 - 14:00 GMT

In a big year for rare disease, experts examine key developments in myositis research at MyoCon 2026

From AI-assisted research and emerging cell therapies to a new drug approval, The Myositis Association's global conference takes stock of the latest science ST. LOUIS, MO, UNITED STATES, September 21, 2026 /⁨EINPresswire.com⁩/ -- MyoCon 2026, The …

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Published on September 21, 2026 - 14:00 GMT

St. Louis welcomes hundreds from around the world to advocate for rare disease care, research and support

MyoCon 2026, held Sept. 24-27, is the world’s largest annual gathering of people with myositis, a rare and often misunderstood group of autoimmune diseases ST. LOUIS, MISSOURI, NC, UNITED STATES, September 21, 2026 /⁨EINPresswire.com⁩/ -- The Myositis …

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Published on May 1, 2026 - 12:00 GMT

May Is Myositis Awareness Month

The Myositis Association Leads Nationwide Effort to Raise Awareness, Advance Research, and Support Patients COLUMBIA , MD, UNITED STATES, May 1, 2026 /⁨EINPresswire.com⁩/ -- The Myositis Association (TMA) is proud to lead Myositis Awareness Month this May …

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Published on March 31, 2026 - 13:15 GMT

The Myositis Association Selected for NIH NOURISH Autoimmunity Challenge

TMA’s innovative, nutrition-focused research proposal is one of 15 projects selected in crowd-sourced search for ideas to reduce autoimmune disease burden. COLUMBIA, MD, UNITED STATES, March 31, 2026 /⁨EINPresswire.com⁩/ -- The Myositis Association (TMA) …

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Published on December 3, 2025 - 14:30 GMT

The Myositis Association and Muscular Dystrophy Association Partner to Fund Yale Research on Immune Dysfunction in IBM

TMA and MDA team up to fund groundbreaking research to better understand what goes wrong in the immune system for those who have IBM, a rare muscle disease. COLUMBIA, MD, UNITED STATES, December 3, 2025 /⁨EINPresswire.com⁩/ -- The Myositis Association ( …

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Published on September 30, 2025 - 13:45 GMT

The Myositis Association Announces Inaugural Recipient of Meredith C. Thomas Memorial Fellowship

The Myositis Association announces recipient of Meredith Thomas Fellowship grant to support research in antisynthetase syndrome and interstitial lung disease. COLUMBIA, MD, UNITED STATES, September 30, 2025 /⁨EINPresswire.com⁩/ -- The Myositis Association …

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Published on September 18, 2025 - 14:00 GMT

The Myositis Association Celebrates World Myositis Day 2025 with Global Events and Special Keynote

The Myositis Association (TMA) joins the global community in celebrating World Myositis Day 2025 on Sept. 21, a day dedicated to raising awareness of myositis. COLUMBIA, MD, UNITED STATES, September 18, 2025 /⁨EINPresswire.com⁩/ -- The Myositis …

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Published on September 17, 2025 - 13:45 GMT

From Sand to Spotlight: Volleyball Star Bourne Turns Battle with Rare Disease into National Honor for Myositis Awareness

Olympian and beach volleyball champion Tri Bourne is celebrated for resilience and powerful advocacy on behalf of people living with rare autoimmune diseases. COLUMBIA, MD, UNITED STATES, September 17, 2025 /⁨EINPresswire.com⁩/ -- The Myositis Association …

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Published on September 9, 2025 - 15:34 GMT

The Myositis Association Hosts MyoCon 2025: A Global Gathering for Myositis Patients and Experts

MyoCon celebrates 30 years of global connection, education, and empowerment for those with myositis—uniting voices, sharing hope, and driving progress. COLUMBIA, MD, UNITED STATES, September 9, 2025 /⁨EINPresswire.com⁩/ -- The Myositis Association (TMA) …

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Published on May 1, 2025 - 18:15 GMT

TMA Champions Myositis Awareness Month and Resolution in US House of Representatives

Rep. Rich McCormick (R - GA) introduces a resolution in the US House of Representatives supporting the designation of May as National Myositis Awareness Month. COLUMBIA, MD, UNITED STATES, May 1, 2025 /⁨EINPresswire.com⁩/ -- May is Myositis Awareness …

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Published on February 27, 2025 - 16:42 GMT

The Myositis Association Hosts Patient Stories on Rare Disease Day—a Virtual Event

Rare Disease Day Summit highlights myositis and the 7000 other rare diseases affecting one in ten Americans COLUMBIA, MD, UNITED STATES, February 27, 2025 /⁨EINPresswire.com⁩/ -- The Myositis Association (TMA), in collaboration with the Myositis …

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Published on January 28, 2025 - 15:00 GMT

Nearly half a million dollars in grant funding for rare disease research reaps rewards for myositis patients

Bringing hope to those who live with rare diseases COLUMBIA, MD, UNITED STATES, January 28, 2025 /⁨EINPresswire.com⁩/ -- The Myositis Association (TMA) recognizes that the best hope for a cure for myositis diseases lies in research. Since 2002, TMA’s …

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Published on January 22, 2025 - 16:08 GMT

Myositis research awards bring hope to those with rare diseases

Projects exploring inclusion body myositis and juvenile myositis awarded COLUMBIA, MD, UNITED STATES, January 22, 2025 /⁨EINPresswire.com⁩/ -- Since 2002, The Myositis Association’s annual research funding program has awarded nearly $8.2 million in …

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Published on September 4, 2024 - 13:00 GMT

The Myositis Association Announces 2024 International Annual Patient Conference

COLUMBIA, MARYLAND, UNITED STATES, September 4, 2024 /⁨EINPresswire.com⁩/ -- The Myositis Association (TMA) is excited to announce its 2024 International Annual Patient Conference: Celebrating Our Connection, set to take place from September 6-8, 2024, in …

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Published on September 3, 2024 - 12:00 GMT

Supermodel Karen Alexander Honored as Patient Ambassador Awardee by The Myositis Association

COLUMBIA, MARYLAND, UNITED STATES, September 3, 2024 /⁨EINPresswire.com⁩/ -- The Myositis Association (TMA) is thrilled to announce that internationally renowned supermodel Karen Alexander will be honored with their Heroes in the Fight Patient Ambassador …

Distribution channels: Beauty & Hair Care, Conferences & Trade Fairs ...

Published on May 31, 2024 - 13:38 GMT

New Documentary Highlights Veterans Living with Inclusion Body Myositis

COLUMBIA, MARYLAND, UNITED STATES, May 31, 2024 /⁨EINPresswire.com⁩/ -- The Myositis Association (TMA) announces the premiere of “Not the Life We Wanted: An Inclusion Body Myositis Documentary.” Released this May for Myositis Awareness Month, this …

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Published on September 3, 2019 - 00:59 GMT

Rare Disease Organization Offers Unique Educational Event

The Myositis Association teaches patients and families how to live well with the rare disease myositis ALEXANDRIA, VA, USA, September 2, 2019 /⁨EINPresswire.com⁩/ -- The premiere myositis patient education event of the year, hosted by the world’s leading …

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