Indo US Organization for Rare Diseases Press Releases - EIN Presswire

Published on February 27, 2026 - 06:05 GMT

IndoUSrare's 2030 Vision to Transform Rare Disease Research: Diaspora Engagement, AI Innovation, Patient-Centered Action

Bridging Nations. Accelerating Therapies for Rare Diseases Together. HERNDON, VA, UNITED STATES, February 27, 2026 /⁨EINPresswire.com⁩/ -- On the occasion of International Rare Disease Day 2026, IndoUSrare reaffirms its bold 2030 vision: No rare disease …

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Published on December 19, 2025 - 09:54 GMT

IndoUSrare Announces Winners of Pitch4RARE Startup Pitch Competition Advancing Rare Disease Innovation

Pitch4RARE advances global pathways to patient-centered rare disease solutions. GenoPhe Biotech Pvt Ltd, IUVA Labs announced as the winners of Pitch4RARE 2025. HERNDON, VA, UNITED STATES, December 19, 2025 /⁨EINPresswire.com⁩/ -- The Indo-US Organization …

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Published on November 18, 2025 - 16:00 GMT

Bridging Hope, Building Equity: Indo-US RARE Summit 2025 Charts a Global Path to Cure the Uncurable

The Indo US Bridging RARE Summit 2025 & the Abbey Meyers Khushi Bridging RARE Awards Gala mark a historic moment for cross-border collaboration in rare diseases MANASSAS, VA, UNITED STATES, November 18, 2025 /⁨EINPresswire.com⁩/ -- Co-hosted by the …

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Published on October 29, 2025 - 05:38 GMT

Indo US Bridging RARE Summit 2025 Unites Global Leaders to Accelerate Therapies for Rare Diseases

A global call to action—Bridging RARE Summit 2025 connects leaders from the US, India & beyond to transform the future of rare diseases. WASHINGTON , DC, UNITED STATES, October 29, 2025 /⁨EINPresswire.com⁩/ -- The Indo US Organization for Rare …

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Published on September 17, 2025 - 12:04 GMT

IndoUSrare Announces 2025 Abbey Meyers Khushi Bridging RARE Award Honorees

Bridging RARE Summit (Nov 2–4, 2025) to spotlight cross-border collaboration, patient impact, and innovation in rare diseases WASHINGTON DC, DC, UNITED STATES, September 17, 2025 /⁨EINPresswire.com⁩/ -- The Indo US Organization for Rare Diseases ( …

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Published on September 9, 2025 - 17:59 GMT

IndoUSrare Quietly Forges Collaborations Ahead of Bridging RARE Summit—Uniting the Global Village Amid Tariffs, Tensions

Patient-centric nonprofit accelerates practical partnerships across borders to keep rare disease research and care moving forward despite macro headwinds WASHINGTON DC, DC, UNITED STATES, September 9, 2025 /⁨EINPresswire.com⁩/ -- Indo US Organization for …

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Published on June 11, 2025 - 15:29 GMT

Rare Disease Research Missing the Mark on Inclusion: RDDC and IndoUSrare propose Framework for Accessible Trials

New research from RDDC and IndoUSrare reveals major gaps in representation in rare disease trials and proposes a practical, equity-centered framework. WASHINGTON D.C, DC, UNITED STATES, June 11, 2025 /⁨EINPresswire.com⁩/ -- The Rare Disease Diversity …

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Published on April 22, 2025 - 13:16 GMT

Accelerating Global Access to Affordable Therapies for Rare Diseases Through Innovative Collaborations

IndoUSrare's expansion of its Corporate and Patient Alliances sets a bold vision in response to major shifts in leadership at the US FDA and NIH. WASHINGTON, DC, UNITED STATES, April 22, 2025 /⁨EINPresswire.com⁩/ -- The Indo US Organization for Rare …

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Published on March 11, 2025 - 19:36 GMT

Rare Diseases at Crossroads: Building on 42 Years of Progress Powered by the Orphan Drug Act

Uniting the World for an UnCommon Cause HERNDON, VA, UNITED STATES, March 11, 2025 /⁨EINPresswire.com⁩/ -- On February 28, 2025, global landmarks lit up in green, blue, purple, and pink for Rare Disease Day, an annual event raising awareness and …

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