Indo US Organization for Rare Diseases Press Releases - EIN Presswire

Published on July 8, 2026 - 14:23 GMT

Lead America and Interfaith Communities to Celebrate Unity in Diversity at the Freedom 250 Liberty Gala

IndoUSrare is honored to partner with the Signature Gala Chair, Rajesh Gooty, and Co-Chair Elisha Pulavarti on this National Celebration with Community Partners WASHINGTON, DC, UNITED STATES, July 8, 2026 /⁨EINPresswire.com⁩/ -- Led by Lead America and …

Distribution channels: Business & Economy, Culture, Society & Lifestyle ...

Published on February 27, 2026 - 06:05 GMT

IndoUSrare's 2030 Vision to Transform Rare Disease Research: Diaspora Engagement, AI Innovation, Patient-Centered Action

Bridging Nations. Accelerating Therapies for Rare Diseases Together. HERNDON, VA, UNITED STATES, February 27, 2026 /⁨EINPresswire.com⁩/ -- On the occasion of International Rare Disease Day 2026, IndoUSrare reaffirms its bold 2030 vision: No rare disease …

Distribution channels: Education, Healthcare & Pharmaceuticals Industry ...

Published on December 19, 2025 - 09:54 GMT

IndoUSrare Announces Winners of Pitch4RARE Startup Pitch Competition Advancing Rare Disease Innovation

Pitch4RARE advances global pathways to patient-centered rare disease solutions. GenoPhe Biotech Pvt Ltd, IUVA Labs announced as the winners of Pitch4RARE 2025. HERNDON, VA, UNITED STATES, December 19, 2025 /⁨EINPresswire.com⁩/ -- The Indo-US Organization …

Distribution channels: Chemical Industry, Healthcare & Pharmaceuticals Industry ...

Published on November 18, 2025 - 16:00 GMT

Bridging Hope, Building Equity: Indo-US RARE Summit 2025 Charts a Global Path to Cure the Uncurable

The Indo US Bridging RARE Summit 2025 & the Abbey Meyers Khushi Bridging RARE Awards Gala mark a historic moment for cross-border collaboration in rare diseases MANASSAS, VA, UNITED STATES, November 18, 2025 /⁨EINPresswire.com⁩/ -- Co-hosted by the …

Distribution channels: Conferences & Trade Fairs, Healthcare & Pharmaceuticals Industry ...

Published on October 29, 2025 - 05:38 GMT

Indo US Bridging RARE Summit 2025 Unites Global Leaders to Accelerate Therapies for Rare Diseases

A global call to action—Bridging RARE Summit 2025 connects leaders from the US, India & beyond to transform the future of rare diseases. WASHINGTON , DC, UNITED STATES, October 29, 2025 /⁨EINPresswire.com⁩/ -- The Indo US Organization for Rare …

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Published on September 17, 2025 - 12:04 GMT

IndoUSrare Announces 2025 Abbey Meyers Khushi Bridging RARE Award Honorees

Bridging RARE Summit (Nov 2–4, 2025) to spotlight cross-border collaboration, patient impact, and innovation in rare diseases WASHINGTON DC, DC, UNITED STATES, September 17, 2025 /⁨EINPresswire.com⁩/ -- The Indo US Organization for Rare Diseases ( …

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Published on September 9, 2025 - 17:59 GMT

IndoUSrare Quietly Forges Collaborations Ahead of Bridging RARE Summit—Uniting the Global Village Amid Tariffs, Tensions

Patient-centric nonprofit accelerates practical partnerships across borders to keep rare disease research and care moving forward despite macro headwinds WASHINGTON DC, DC, UNITED STATES, September 9, 2025 /⁨EINPresswire.com⁩/ -- Indo US Organization for …

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Published on June 11, 2025 - 15:29 GMT

Rare Disease Research Missing the Mark on Inclusion: RDDC and IndoUSrare propose Framework for Accessible Trials

New research from RDDC and IndoUSrare reveals major gaps in representation in rare disease trials and proposes a practical, equity-centered framework. WASHINGTON D.C, DC, UNITED STATES, June 11, 2025 /⁨EINPresswire.com⁩/ -- The Rare Disease Diversity …

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Published on April 22, 2025 - 13:16 GMT

Accelerating Global Access to Affordable Therapies for Rare Diseases Through Innovative Collaborations

IndoUSrare's expansion of its Corporate and Patient Alliances sets a bold vision in response to major shifts in leadership at the US FDA and NIH. WASHINGTON, DC, UNITED STATES, April 22, 2025 /⁨EINPresswire.com⁩/ -- The Indo US Organization for Rare …

Distribution channels: Conferences & Trade Fairs, Healthcare & Pharmaceuticals Industry ...

Published on March 11, 2025 - 19:36 GMT

Rare Diseases at Crossroads: Building on 42 Years of Progress Powered by the Orphan Drug Act

Uniting the World for an UnCommon Cause HERNDON, VA, UNITED STATES, March 11, 2025 /⁨EINPresswire.com⁩/ -- On February 28, 2025, global landmarks lit up in green, blue, purple, and pink for Rare Disease Day, an annual event raising awareness and …

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