Association for Creatine Deficiencies Press Releases - EIN Presswire

Published on March 13, 2026 - 06:58 GMT

Beast Games Winner Jeff Allen Doubles Down on Mission to Fund Cure for Rare Disease Affecting His Son

Allen completes second Ruck4Rare & pledges $1 million to ACD's Race for a Cure CARLSBAD, CA, UNITED STATES, March 13, 2026 /⁨EINPresswire.com⁩/ -- (March 10, 2026) — Jeff Allen, winner of Beast Games Season 1 and a standout participant in Season 2 …

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Published on February 12, 2025 - 19:07 GMT

ACD Awards $145,000 to Advance Creatine Deficiency Research at Six Research Centers

Researchers at six institutions funded by Association for Creatine Deficiencies to research creatine transporter deficiency, GAMT deficiency and AGAT deficiency CARLSBAD, CA, UNITED STATES, February 12, 2025 /⁨EINPresswire.com⁩/ -- The Association for …

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Published on June 25, 2024 - 21:39 GMT

ACD Hosts CCDS Scientific & Patient Symposium and Champions for a Cure Gala in Salt Lake City

ACD is bringing researchers, CCDS patients and the Salt Lake City community together for a symposium and gala on June 28 to 30. Tickets are still available! CARLSBAD, CA, USA, June 25, 2024 /⁨EINPresswire.com⁩/ -- The Association for Creatine Deficiencies …

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Published on June 21, 2024 - 12:44 GMT

ACD Approved for $249,650 Award for Project to Build Upon Prior Work and Empower CCDS Parent Engagement in Research

ACD has been approved for a $249,650 funding award through the Eugene Washington PCORI Engagement Award Program to fund a two year project. CARLSBAD, CALIFORNIA, USA, June 21, 2024 /⁨EINPresswire.com⁩/ -- The Association for Creatine Deficiencies (ACD) …

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Published on March 19, 2024 - 14:59 GMT

ACD Funds $135,000 in Creatine Deficiency Research Fellowship Awards

Association for Creatine Deficiencies announced the funding of $135,000 for 5 early career researchers studying Cerebral Creatine Deficiency Syndromes. CARLSBAD, CA, UNITED STATES, March 19, 2024 /⁨EINPresswire.com⁩/ -- Today, the Association for Creatine …

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Published on June 29, 2023 - 15:00 GMT

First Baby with GAMT Deficiency Identified through Newborn Screening in Australia

CARLSBAD, CA, UNITED STATES, June 29, 2023 /⁨EINPresswire.com⁩/ -- Today the Association for Creatine Deficiencies (ACD) announced that a baby has been identified through newborn screening with Guanidinoacetate Methyltransferase (GAMT) Deficiency in …

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Published on March 20, 2023 - 17:47 GMT

Creatine Deficiency Research Center Funded by ACD Launches at University of Utah

CARLSBAD, CA, UNITED STATES, March 20, 2023 /⁨EINPresswire.com⁩/ -- The Association for Creatine Deficiencies (ACD) today announced the launch of the new Creatine Deficiency Research Center at the University of Utah, which has been set up with funding …

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Published on February 17, 2023 - 15:00 GMT

ACD Announces Board of Directors Leadership Changes

CARLSBAD, CA, UNITED STATES, February 17, 2023 /⁨EINPresswire.com⁩/ -- The Association for Creatine Deficiencies today announced leadership changes within the organization’s board of directors, with Laura Trutoiu stepping down from the roles of chair and …

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Published on February 14, 2023 - 15:00 GMT

ACD FUNDS $75,000 FOR 2023 CREATINE DEFICIENCY RESEARCH FELLOWSHIPS

CARLSBAD, CA, UNITED STATES, February 14, 2023 /⁨EINPresswire.com⁩/ -- Today, the Association for Creatine Deficiencies (ACD) announced the funding of a total of $75,000 for early career researchers studying Cerebral Creatine Deficiency Syndromes (CCDS), …

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Published on January 16, 2023 - 21:29 GMT

U.S. Secretary of Health Recommends Universal Newborn Screening for GAMT Deficiency

CARLSBAD, CA, UNITED STATES, January 16, 2023 /⁨EINPresswire.com⁩/ -- The Association for Creatine Deficiencies (ACD) announced that the United States Secretary of Health and Human Services Xavier Becerra has officially approved the addition of …

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Published on October 29, 2022 - 19:16 GMT

The Newborn Screening Ontario Program Begins Screening for GAMT

CARLSBAD, CA, USA, October 29, 2022 /⁨EINPresswire.com⁩/ -- Guanidinoacetate methyltransferase (GAMT) deficiency is now one of the disorders that lab technicians are looking for newborns in Ontario, Canada. The program began screening for GAMT deficiency …

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Published on September 19, 2022 - 20:44 GMT

MDHHS adds Guanidinoacetate Methyltransferase Deficiency to newborn screening panel

LANSING, MICHIGAN, USA, September 19, 2022 /⁨EINPresswire.com⁩/ -- September is Newborn Screening Awareness Month, and starting this month Michigan babies with guanidinoacetate methyltransferase (GAMT) deficiency will now be diagnosed early thanks to the …

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Published on May 12, 2022 - 21:43 GMT

ACD Announces the Advancement of Universal GAMT Newborn Screening for Approval by U.S. Secretary of Health

CARLSBAD, CA, USA, May 12, 2022 /⁨EINPresswire.com⁩/ -- CONTACT: Erin Coller, Director of Communications erin@creatineinfo.org FOR IMMEDIATE RELEASE ACD Announces the Advancement of Universal GAMT Newborn Screening for Approval by U.S. Secretary …

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Published on April 7, 2022 - 18:03 GMT

Association for Creatine Deficiencies Announces Second GAMT Gene Therapy Grant Awarded to Dr. Gerald Lipshutz

CARLSBAD, CA, USA, April 7, 2022 /⁨EINPresswire.com⁩/ -- The Association for Creatine Deficiencies (ACD) has granted a second Gene Therapy Award of $10,000 to Gerald Lipshutz, MD, MS, of UCLA. Lipshutz received an initial award to support his work into …

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Published on February 1, 2022 - 17:13 GMT

ACD Funds over $100,000 for Creatine Deficiency Research Fellowships

CARLSBAD, CALIFORNIA, UNITED STATES, February 1, 2022 /⁨EINPresswire.com⁩/ -- Today, the Association for Creatine Deficiencies (ACD) announced the funding of a total of $105,000 for early career researchers studying Cerebral Creatine Deficiency Syndromes ( …

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Published on November 9, 2021 - 14:33 GMT

PCORI Funding Awarded to Association for Creatine Deficiencies

Project to Empower CCDS Parents in Research Engagement CARLSBAD, CALIFORNIA, UNITED STATES, November 9, 2021 /⁨EINPresswire.com⁩/ -- The Patient-Centered Outcomes Research Institute (PCORI) selected the Association for Creatine Deficiencies (ACD) for a $ …

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