Thought Leadership & Innovation Foundation Collaborates on Launch of Limb Loss and Preservation Registry (LLPR)
LLPR empowers manufacturers, prosthetic clinics, hospital systems and EHR systems, addresses public health knowledge gap
TLI supports the Mayo Clinic in launching the LLPR through the National Institute of Child Health and Human Development (NICHD). The centralized data warehouse was designed to collect relevant patient data and perform analysis to improve the quality of care and patient outcomes. The LLPR has also achieved authorization from the Federal Risk and Authorization Management Program (FedRAMP), a government-wide program that promotes the adoption of secure cloud services across the federal government by providing a standardized approach to security and risk assessment for cloud technologies and federal agencies.
To learn more visit llpregistry.org.
“The LLPR addresses a substantial public health knowledge gap by giving stakeholders the ability to analyze the data by age, gender and type of limb loss, preservation surgery or prosthesis to support decision making for the long-term needs of these individuals,” says Reed Hartley, Executive Director, TLI. “The LLPR is vital to help patients maintain a high level of functionality, refining rehabilitation approaches and guiding the improvement of prosthetic devices. This national registry aligns with our efforts to support evidence-based decision-making, improve healthcare delivery and enhance quality of life or underserved patient populations.”
The LLPR offers vital information for key stakeholders:
Manufacturers: Data that shows how prosthetic products positively impact the lives of patients and guidance for innovation in prosthetic devices
Payors: Data that shows feasible alternative care plans for patients with limb loss and limb preservation surgeries, and how prosthetic products positively impact the lives of patients to encourage reimbursement.
Hospitals: Reliable and up-to-date, researchable data to understand patient outcomes after limb loss patients leave the care setting
Clinics: Best practices from prosthetic clinics around the country for the best patient outcomes, from fittings to treatment plans
“Despite the significant personal and societal impact associated with limb difference, limb preservation and limb loss, until now there has been little current data on effective clinical practices and technologies in this field,” Hartley adds. “This data repository is being hailed as the first national registry of its kind, geographically and demographically representing the U.S. population to improve prevention, treatment and rehabilitation effort.”
About TLI
Thought Leadership & Innovation Foundation (TLI) is a not-for-profit organization that works at the nexus of science, technology and public health, innovating for superior prevention, treatment and outcomes for those facing life-altering medical diagnoses. TLI helps patients across the country and around the world find better healthcare outcomes. Visit www.thoughtfoundation.org and follow us on Twitter and LinkedIn.
Reed Hartley
Thought Leadership & Innovation Foundation
+1 703-473-9083
reed.hartley@thoughtfoundation.org
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