PENNSYLVANIA, September 10 - recessive inheritance; and

WHEREAS, ARPKD is a rare form of PKD and occurs in 1 in

20,000 children worldwide; and

WHEREAS, Symptoms of ARPKD begin in the earliest months of

life, even in the womb; and

WHEREAS, ARPKD is very serious because it progresses rapidly

and is often fatal in the first few months of life; and

WHEREAS, Symptoms that may indicate that an individual has

PKD include back or side pain, an increase in the size of the

abdomen, blood in the urine, frequent bladder or kidney

infections, fluttering or pounding in the chest and high blood

pressure; and

WHEREAS, High blood pressure is the most common sign of PKD;

and

WHEREAS, If high blood pressure is treated, the treatment can

help slow or even prevent kidney failure; and

WHEREAS, Approximately 50% of individuals with PKD have

kidney failure by 60 years of age, and 60% of individuals have

kidney failure by 70 years of age; and

WHEREAS, The only options available for individuals

experiencing kidney failure are dialysis or a kidney transplant;

and

WHEREAS, Although PKD has no cure, supportive treatments can

be administered to control symptoms, help slow cyst growth and

prevent or slow down the loss of kidney function that results

from PKD; and

WHEREAS, Supportive treatments for PKD include all of the

following:

(1) Carefully controlling blood pressure.

(2) Promptly treating bladder or kidney infections with

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