The Newsroom of Hydrocephalus Association

Hydrocephalus Association Press Releases

  • Published on February 16, 2022 - 14:00 GMT

    Statement by Hydrocephalus Association President and CEO Diana Gray on Washington Post Article About Chloe Kral

    Chloe Kral suffered for years and was told she had severe mental illness before discovering later that she had undiagnosed hydrocephalus. BETHESDA, MD, UNITED STATES, February 16, 2022 /⁨EINPresswire.com⁩/ -- On behalf of the Hydrocephalus Association we want to congratulate Chloe Kral for her bravery in sharing her story with the Washington Post. Chloe suffered needlessly for years and was told by medical professionals that she had severe mental illness, only to discover much later that she had …

    Distribution channels: Healthcare & Pharmaceuticals Industry ...
  • Published on December 7, 2021 - 22:07 GMT

    AHCRN Awarded $14 Million NINDS Grant to Study Effectiveness of Shunt Treatment for Normal Pressure Hydrocephalus

    Largest grant ever awarded to study adult hydrocephalus. BETHESDA, MD, UNITED STATES, December 7, 2021 /⁨EINPresswire.com⁩/ -- Idiopathic Normal Pressure Hydrocephalus (iNPH) is a complex disorder of the elderly that is caused by an excess accumulation of cerebrospinal fluid in the brain and includes symptoms of dementia, difficulty walking, and impaired bladder control that affects as many as 700,000 persons in the U.S. The only treatment is for a neurosurgeon to implant a permanent internal drainage …

    Distribution channels: Healthcare & Pharmaceuticals Industry, Science ...
  • Published on October 21, 2021 - 12:00 GMT

    CONGRESSWOMAN CINDY AXNE JOINS CONGRESSIONAL HYDROCEPHALUS CAUCUS

    Caucus helps find solutions for the leading cause of brain surgery in children. DES MOINES, IOWA, UNITED STATES, October 21, 2021 /⁨EINPresswire.com⁩/ -- Rep. Cindy Axne (IA-3) has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus. The Hydrocephalus Association applauds Rep. Axne’s support of families impacted by hydrocephalus. Her action reflects a welcome commitment to working with members of Congress to find practical, bipartisan solutions for the over one million Americans …

    Distribution channels: Healthcare & Pharmaceuticals Industry, Politics ...
  • Published on October 20, 2021 - 12:00 GMT

    CONGRESSMAN MIKE LEVIN JOINS CONGRESSIONAL HYDROCEPHALUS CAUCUS

    Caucus helps families impacted by a brain condition that has no cure. WASHINGTON, DC, UNITED STATES, October 20, 2021 /⁨EINPresswire.com⁩/ -- Rep. Mike Levin (CA-49) has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus. The Hydrocephalus Association applauds Rep. Levin’s support of children and adults living with hydrocephalus, a chronic neurological condition that affects over 1 million Americans. "I'm proud to join the caucus, which will help find solutions for …

    Distribution channels: Healthcare & Pharmaceuticals Industry, U.S. Politics ...
  • Published on September 30, 2021 - 19:37 GMT

    Congressman Lloyd Doggett Recognizes September as Hydrocephalus Awareness Month

    Raises awareness of the leading cause of brain surgery in children. WASHINGTON, DC, UNITED STATES, September 30, 2021 /⁨EINPresswire.com⁩/ -- There are over 1 million Americans living with hydrocephalus, a chronic neurological condition that has no cure and can only be treated with brain surgery. To raise awareness of the condition, Congressman Lloyd Doggett (D-TX) issued a statement in the Congressional Record recognizing September as Hydrocephalus Awareness Month. Congressman Doggett, along with Chris …

    Distribution channels: Healthcare & Pharmaceuticals Industry, Politics ...
  • Published on September 28, 2021 - 11:45 GMT

    Local Mom on a Mission to Find a Cure for Son’s Brain Disorder

    Will take part in Cincinnati WALK to End Hydrocephalus on Oct. 3rd CINCINNATI, OH, UNITED STATES, September 28, 2021 /⁨EINPresswire.com⁩/ -- Chase Parker Lorenzo was just 9 months old when he was diagnosed with hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Now at 14 years old, Chase has endured nine brain surgeries to treat his condition. Hoping to raise awareness and funds for research, Chase’s mom Bethann Lorenzo will take part in …

    Distribution channels: Healthcare & Pharmaceuticals Industry, Science ...
  • Published on September 14, 2021 - 18:49 GMT

    Massachusetts Governor Names September Hydrocephalus Awareness Month

    Aims to raise awareness about hydrocephalus, the leading cause of brain surgery in children. BOSTON, MA, UNITED STATES, September 14, 2021 /⁨EINPresswire.com⁩/ -- Every 15 minutes, a brain surgery is performed to treat hydrocephalus, a life-threatening brain disorder that affects over 1 million Americans. To raise awareness of the condition, Massachusetts Governor Charlie Baker has named September Hydrocephalus Awareness Month. The Governor signed a Hydrocephalus Awareness Month proclamation on …

    Distribution channels: Healthcare & Pharmaceuticals Industry, Science ...
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Hydrocephalus Association
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Founded in 1983 by the parents of children with hydrocephalus, the Hydrocephalus Association (HA) is the nation’s largest and most widely respected organization dedicated to hydrocephalus. Since 2009, HA has invested over $13 million in research, making it the largest non-profit and non-governmental funder of hydrocephalus research in the United States. The Hydrocephalus Association's mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition.

http://www.hydroassoc.org